Immortal Bird Postscript

Doron Weber on Immortal Bird Aftermath

About Doron Weber

From Wikipedia:

Doron Weber is an American author best known for his memoir, Immortal Bird: A Family Memoir,[1] and a foundation executive. Born on a kibbutz in Israel in 1955, Weber is a graduate of Brown University (B.A., 1977) and studied at the Sorbonne and Oxford University (M.A., 1981), where he was a Rhodes Scholar.[2] He has held positions at the Readers Catalog, Society for the Right to Die, The Rockefeller University, and the Alfred P. Sloan Foundation, where he has created seminal programs in science and the arts. Weber has worked as a newspaper boy, busboy, waiter, and taxi driver, has competed as a boxer and triathlete, and, in the summer of 2012, biked 3400 miles in the Big Ride Across America.[3]

Immortal Bird

Weber’s memoir, Immortal Bird, the portrait of a teenager’s short, vibrant life and the relationship between father and son, documents the family’s navigation of the complex medical journey of Doron and Shealagh Weber’s first child, Damon, who was born in 1988 with a congenital heart defect. The defect, a single ventricle, was successfully repaired, allowing him to lead a remarkably full life until he developed new complications as a teen. When he was 16½, Damon received a successful heart transplant but then died of a post-transplant infection that was misdiagnosed as organ rejection and left untreated. The family brought suit in 2006 against New York-Presbyterian Hospital/Columbia University Medical Center where their son was a patient but, as of 2013, the suit remains unresolved. However, the book continues to be read and discussed by the medical profession and in February 2013, it was the lead story in Congenital Cardiology Today which recommended that all pediatric cardiologists and cardiac surgeons read Immortal Bird and review the medical issues raised because it “may lead to improvements in the way we care for and treat our patients.”{3b} In addition to being named by The Washington Post as one of “50 Notable Works of Non-Fiction” for 2012,[4] Immortal Bird was listed as Amazon’s Best Book of the Month,[5] on February 2012 Indie NEXT List,[6] and was one of nine official selections of the 2013 Chautauqua Literary and Scientific Circle,[7] the oldest book club in America. The paperback was published in February, 2013.

Alfred P. Sloan Foundation Work
Since 1995, Weber has worked as a program director at the Alfred P. Sloan Foundation, a nonprofit philanthropic organization that supports research and education in science, technology, and economic performance. As Vice President, Programs,[8] Weber runs the Public Understanding of Science and Technology Program where he pioneered the synergistic use of media and the arts to translate science for the public.[9][10][11][12] He has launched national programs in theater, film and television that commission, develop, produce, and distribute new work bridging the two cultures of science and the humanities. Grantees include Manhattan Theatre Club, Sundance Film Institute, National Geographic Television, PBS, National Public Radio, BAM, and World Science Festival. Weber also directs the Foundation’s efforts to promote Universal Access to Knowledge by using emerging developments in digital information technology to make the benefits of human knowledge and human culture accessible to people everywhere. Grantees include Library of Congress, Internet Archive, Wikimedia Foundation, Harvard University and Digital Public Library of America. In 2012, Weber made a grant for a pilot meeting on rice science at the Lee Kuan Yew School of Public Policy that brought together scientists from India, Pakistan, Bangladesh, Sri Lanka, Nepal, Bhutan, and China.

Awards

In 2004, the Sloan Foundation received the National Science Board’s Public Service Award, citing Weber’s program “for its innovative use of traditional media—books, radio, public television–and its pioneering efforts in theater and commercial television and films to advance public understanding of science and technology”.[13] On behalf of the Foundation, he accepted the PBS Leadership Award for over a decade of support;[14] the Nielsen Impact Award for Film from the Hollywood Reporter (2009);[9] the Council of Foundation citation for “the visionary funding decisions of foundations in using media for their program goals” for a new web series, The Secret Life of Scientists (2010);[15] and the Gold Communicator Award for a documentary about the Foundation’s history, “Sloan at 75” (2011).[16] His work at Sloan has been profiled in The New York Times,[17] The Boston Globe,[18] Fortune,[19] Filmmaker Magazine,[20] and The American Way.[21]

Other Civic Work

Weber serves as President of The Writers Room Board of Trustees,[22] Vice Chair of the Digital Public Library of America Steering Committee,[23] Advisory Board Member of the Science and Entertainment Exchange,[24] and Board Visitor of the Wikimedia Foundation.[25] From 1995-2005, he served as secretary of the New York State Committee for the Rhodes Scholarships. He also is a member of the Council on Foreign Relations[26] and the Century Club.[citation needed]

Publications
Immortal Bird
Final Passages (with Judith C. Ahronheim)
The Complete Guide to Living Wills (with Evan R. Collins, Jr.)
Safe Blood (with Joseph Feldschuh)
“Can Physicians Learn from Their Mistakes and Self-Correct?” Psychology Today, 2013
“Sabbath’s Theater”. Boston Review. October/November 1995.
“Boomers Rewrite Candidate Profiles,” LA Times, 1996
“A Way Around Kevorkian,” USA Today, 1994
“The Best and the Guiltiest,” The New York Times, 1993
“BYOB,” Baltimore Sun, 1990

References

1.^ Lindbergh, Reeve (February 24, 2012). “”Immortal Bird: A Family Memoir” by Doron Weber”. Washington Post. Retrieved 20 January 2013.
2.^ Novogratz, Jacqueline (August 23, 2004). “The Aspen Seven You think radical change is daunting?”. Fortune Magazine. Retrieved 18 January 2013.
3.^ Weber, Doron. “Big Ride Update: Day 48–Crossing the Finish Line”. Immortal Bird Postscript. Retrieved 18 January 2013.
3b.^ Moore, John W, “A Cautionary Tale for Pediatric Cardiologists,” Congenital Cardiology Today, Volume 11, Issue 2, Feb 2013
4.^ “Best of 2012: 50 notable works of nonfiction”. Washington Post. November 16, 2012. Retrieved 18 January 2013.
5.^ “Best Books of the Month: February 2012”. Amazon. Retrieved 18 January 2013.
6.^ “February 2012 Indie Next List”. Indiebound. Retrieved 18 January 2013.
7.^ “2013 CLSC Selections”. CLSC. Retrieved 18 January 2013.
8.^ http://www.sloan.org/about-the-foundation/staff-directory/show-staff/show/people/doron-weber/
9.^ a b “HIFF And Alfred P. Sloan Foundation Celebrate Ten Years”. Hamptons.com. Retrieved 18 January 2013.
10.^ Coakley, Jacob, MTC Announces 2012 Alfred P. Sloan Commissions, retrieved 2013-01-20
11.^ “Sundance Institute and Alfred P. Sloan Mark 10th Anniversary of Collaboration” (Press release). Sundance Film Festival. January 17, 2013. Retrieved 2013-01-20.
12.^ Cohen, Patricia. “Sloan Group Is Lab Partner to the Arts”. New York Times. Retrieved 2013-01-20.
13.^ http://www.nsf.gov/nsb/awards/public_recipients.jsp#2004
14.^ “WINNERS OF 2007 PUBLIC TELEVISION LEADERSHIP AWARD TO BE HONORED AT PBS DEVELOPMENT CONFERENCE”. PBS News. Retrieved 18 January 2013.
15.^ Sitney, Sky. “44th Annual Film and Video Festival” (PDF). Fundfilm. Retrieved 19 January 2013.
16.^ http://www.communicatorawards.com/winners/gallery/?year=6&type=2&award=E&offset=180
17.^ COHEN, PATRICIA (May 6, 2011). “Sloan Group Is Lab Partner to the Arts”. New York Times.
18.^ “Growing a Culture: If One Foundation Has Its Way, “Copenhagen” and “A Beautiful Mind” Won’t be the Only Science You See on Stage and Screen”. Boston Globe. January 26, 2003.
19.^ “Teaching Science Through Entertainment”. Fortune. August 23, 2004.
20.^ “The Alfred P. Sloan Foundation’s Doron Weber”. Filmmaker Magazine. September 5, 2012.
21.^ “Making Science Sexy”. American Way.
22.^ “Board of Trustees”. The Writers Room. Retrieved 19 January 2013.
23.^ “Steering Committee”. Digital Public Library of America. Retrieved 19 January 2013.
24.^ “Advisory Board”. The Science & Entertainment Exchange. Retrieved 19 January 2013.
25.^ “Vote:Board Visitor – Doron Weber”. Wikimedia Foundation. Retrieved 19 January 2013.
26.^ “Membership Roster”. Council on Foreign Relations. Retrieved 19 January 2013.

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Doron Weber on Immortal Bird Aftermath

Doron Weber on Immortal Bird Aftermath

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