Immortal Bird Postscript

Doron Weber on Immortal Bird Aftermath

A Dad’s Crusade: Immortal Bird in the News

Today March 30 2012, on the seventh anniversary of Damon’s death, the New York Daily News ran an article about Immortal Bird and our family’s lawsuit against New York Presbyterian/Columbia University Medical Center that is still outstanding.

” A Dad’s Crusade: Son’s death at hospital detailed in his new book” is the tilte of the print edition, which includes two photos previously posted on this blog, one of Damon with horses and one of me and Damon on the Deadwood set.

The title of the online edition, which link is hereby provided, was more hard-hitting (and longer) . “Brooklyn dad turns son’s death into crusade for change in new book blasting Columbia-Presbyterian Hospital: Doron Weber’s book, Immortal Bird, chronicles the life and tragic death of his son Damon, who Weber charges was fatally misdiagnosed by the hospital during heart transplant surgery.”

It’s an excellent article and points out how the book is resonating with readers and especially among health professionals, with several recommending it be adopted for teaching medical students. And it shows how New York Presbyterian/Columbia University Medical Center, which continues to avoid handing over records and documents realting to the case, refuses to take responsibility for Damon’s death.

One correction: Damon was not fatally misdiagnosed during heart transplant surgery. He survived the surgery and was actually flourishing with his new heart but when he developed a well-known post-transplant infection, the hospital misdiagnosed it and kept treating him for rejection–the opposite treatment. They delayed treating him for infection for many weeks, until it was too late, despite the fact that he had no sign of rejection and every symptom of infection.

I will have more to say about the case but today is a day for remembrance and reflection. It began with an 8:30 am visit to the Day family plot in Woodlawn cemetery in the Bronx where we placed several peach tree blossoms, a red maple leaf, white daisies and white snowdrops on Damon’s gravesite. The front of his simple granite marker reads:

Damon Daniel Weber

Son of Doron and Shealagh Weber

Born August 8, 1988, Died March 30, 2005

On the back of his stone marker it says:

Actor. Writer. Director.

Son. Brother. Friend.

He had a lion”s heart

A pure, rapturous smile

And flame red hair.

He burns forever bright.

Advertisements

Single Post Navigation

2 thoughts on “A Dad’s Crusade: Immortal Bird in the News

  1. Portia Moore on said:

    Mr. Weber:
    I just read your very moving book. I am a mother, a nurse, and a lawyer. I hope that you are still pursuing your lawsuit against the hospital and the doctors. You and your family deserve to be compensated generously for thier incompetance. And, I say this as a defense attorney for large corporations and medical institutions.

  2. Dear Mr. Weber,

    I was born with a congenital heart defect–tetrology of fallot with a double outlet right ventricle. I have had several heart surgeries, and now at the age of 32 I have an implantable cardioverter defibrillator (ICD). I am currently doing a fundraiser, where I am raising $10,000 for the Adult Congenital Heart Association (ACHA) by my birthday, November 17th, 2012. I would love it if you would consider making a donation to my fundraiser.

    I know your late son Damon also has a congenital heart defect. My vision is to ensure that all adults living with congenital heart defects have access to a beautiful life like mine. Part of the work ACHA does is to train doctors and hospitals on the medical complexities that come with being an adult with a congenital heart defect. They also provide much needed education, advocacy, and support for those living with a congenital heart defect and their families.

    Visit http://www.razoo.com/story/Beautifullife2012 to make a donation. Every dollar counts.

    As part of my fundraising movement, I have started a blog. The purpose of my blog is to inspire more people with medical conditions to seek healthy active lives. Please visit beautifullife2012.org to see the work I am doing to give back to the community.

    Thank you in advance for any contributions.

    With all my heart,
    Ta-Shana Taylor

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Seth's Blog

Doron Weber on Immortal Bird Aftermath

Doron Weber on Immortal Bird Aftermath

The WordPress.com Blog

The latest news on WordPress.com and the WordPress community.

%d bloggers like this: